We had Max at the GI on Friday for a follow-up visit. His weight his still down but he's on the charts. According to their scale, he'd gained about 9 oz in 2 weeks. So, we're counting it as a success. We are stuck having to deal with one very congested baby. He has been refluxing up into his sinuses. So, he's very congested and having a hard time breathing. The medication they normally would have prescribed has just had a "black box warning" added to it. We decided that Max didn't fit the criteria to go around the warning and it just wasn't worth the risk. So, we are just dealing with one very snorty baby. He sounds like Chloe most of the time. I did buy a battery powered nasal aspirator. I LOVE that thing.
We also went back to physical therapy this morning. Cathy (his PT) thinks he's doing better. He's still having a hard time holding his head up straight. He really like to tilt his head to the right. She put some tape on his neck to help remind him to hold his head up straight. We'll see if it works. I'm about done with PT. I'm hoping this works and we can get discharged.
Daylen was on Spring Break last week. He spent a lot of time vegging with Grandpa. He went to the Magic House with Grandma, Grandpa & Aubrey. Jason took off work on Wednesday and they went to Incredible Pizza- his favorite place. They also went to the Harlem Globetrotters. Did you know they play "crazy basketball?" And best of all our team won!! I post some pics as soon as I can get Jason to send them to me.
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